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  • Show Me the Money
  • About US
  • Expert Panel
  • Recommendations
  • Health Data Access
  • Other Policy Resources
  • Washington Download
  • Connect With Us
  • Show Me the Money
  • About US
  • Expert Panel
  • Recommendations
  • Health Data Access
  • Other Policy Resources
  • Washington Download
  • Connect With Us
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    • Unlocking Patient Data

      Pulling the Linchpin of Data Exchange and Patient Empowerment

       

      Access to information and the ability to integrate and use information has changed how individuals book travel, find information about prices and products and compare and review services. Information can empower individuals, but healthcare has lagged other service sectors. In 1996, HIPAA gave patients a right to a copy of their health information maintained by hospitals, physician offices and (later) laboratories. In 2018, patients still struggle to leverage this right guaranteed by law.

       

      From HIPAA to the HITECH Act to the 21st Century Cures Act, Congress has prioritized improved patient data access as a key lever to improve care, enable research, and empower patients to live healthy lifestyles. But enacting these policies into regulations has proven more difficult than Congress imagined. This panel discussion will discuss how various federal policies are impacting patients’ ability to access and leverage their data and explore various ideas to modernize HIPAA.


      Join the American Medical Informatics Association (AMIA) and the American Health Information Management Association (AHIMA) in a panel discussion to discuss how various federal policies are impacting patients’ ability to access and leverage their health data. And learn how recent policies from the Centers for Medicare & Medicaid Services and the Office of the National Coordinator for Health IT may better deliver on the promises made by Congress more than 20 years ago.

       

      Click here for a Congressional Issue Brief outlining key legislative actions related to Individuals' Right of Access.

       

      Read the joint AMIA / AHIMA press release, "HIPAA Modernization Needed, Experts Say"

       

      For access to the presentation slides, click here.
       

    • About AMIA & AHIMA

      Who Are We?

      American Medical Informatics Association

      AMIA is the professional home for more than 5,500 informatics professionals, representing researchers, front-line clinicians, public health experts, and educators who bring meaning to data, manage information, and generate new knowledge across the health and research enterprise.

      American Health Information Management Association

      AHIMA represents more than 103,000 health information professionals in the United States and around the world. AHIMA’s credentialed and certified HIM members can be found in more than 40 different employer settings in 120 different job functions—consistently ensuring that health information is accurate, timely, complete, and available to patients and clinicians.

    • Expert Panel

      Click each panelist's title for their biography

      Rita Bowen, MA, RHIA, CHPS, CHPC, SSGB

      Vice President, Compliance and HIM Policy, MRO

      Janelle Burns, JD, CHPS

      HIPAA Attorney, Private Practice

      Erin Mackay, MPH

      Associate Director, Health Information Technology Programs, National Partnership for Women & Families

      Thomas Payne, MD, FACMI

      Medical Director, Information Technology Services, UW Medicine

      Trent Rosenbloom, MD, MPH, FACMI

      Associate Professor of Biomedical Informatics, Vanderbilt University

    • Recommendations to Improve Individuals' Health Data Access

      Joint Recommendations to Modernize HIPAA

      DOWNLOAD
    • Patient Data Policy Resources

      Key policy resources for policymakers and consumers

      AMIA Patient Empowerment Policy Principle

      American Medical Informatics Association

      AHIMA Fundamentals of the Legal Health Record and Designated Record Set

      American Health Information Management Association

      AHIMA Consumer Health Information Bill of Rights

      American Health Information Management Association

      HIPAA and Your Rights to Your Health Information

      National Partnership for Women & Families

      Individual Right of Access Interactive Guide

      National Partnership for Women & Families

      ‘Complete Medical Record’ Key for Patients

      American Medical Informatics Association

    • Other Policy Resources

      Download these Other AMIA & AHIMA Policy Resources Below

      AMIA Policy One-Pager

      Overview of AMIA and its Policy Priorities

      Download

      Crossing the Health IT Chasm

      A 2017 JAMIA paper detailing ways that policymakers should focus on liberating data for patients, improving interoperability for clinicians, and enhancing the capacity for research and innovation to impact patient care.

      Download

      Redefining Our Picture of Health - An AMIA White Paper

      A 2017 AMIA white paper details a new set of policy principles and framework meant to address cross-cutting issues identified by AMIA Policy Invitational participants and to encourage a more unified care, research, wellness, and community ecosystem.

      Download

      Click here for more AMIA Public Policy Statements and Comment Letters

      Click here for more AHIMA Public Policy Statements and Comment Letters

    • AMIA's Washington Download

      Your bi-weekly source for health informatics policy news and information from around the Beltway, covering action from the Hill, the Administration and important AMIA collaborators.

      Subscribe
    • Connect With Us

      AMIA

      AMIA

      AMIA

      AMIA

      AMIA

      AHIMA

      AHIMA

      AHIMA

      AHIMA

    AMIA (http://www.amia.org) is a 501(c)(3) non-profit dedicated to supporting more than 5,500 informatics professionals, representing frontline clinicians, researchers, public health experts, and educators who bring meaning to data, manage information, and generate new knowledge across the clinical research and healthcare enterprise.

     

    AHIMA (www.ahima.org) represents more than 103,000 health information professionals in the United States and around the world. AHIMA’s credentialed and certified HIM members can be found in more than 40 different employer settings in 120 different job functions—consistently ensuring that health information is accurate, timely, complete, and available to patients and clinicians.

     

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